Delfien received a research grant for young researchers from Geneeskundige Stichting Koningin Elisabeth/Fondation Médicale Reine Elisabeth for her project "Zebrafish as a model to study pain in Ehlers-Danlos syndromes". She received it out of the hands of Her Royal Highness Princes Astrid during the academic session in the Royal Palace in Brussels.

Save the date: ReCONNET, the first international congress on rare and low-prevalence connective tissue and musculoskeletal diseases, takes place in Brussels from the 20th until the 22nd of April.

Thanks to the ERN exchange program, Karelle Bénistan and Caroline Michot from APHP (Paris) could spend a week in Ghent and visit our clinic and lab at the CMGG. We had very interesting and fruitful discussions on ongoing research projects and clinical challenges regarding the Ehlers-Danlos Syndromes.
Thank you ERN Reconnet!

Learn more about Zebrapad here: www.zebrapadvzw.be

ACRehab, the postgraduate academy for physiotherapy at Ghent University, organised an accredited course. This course took place on the 13th of December and was titled: Hypermobility, how do you handel this? The lecturers were Inge De Wandele, Lies Rombaut, Hanne De Schacht and Nathalie Schelpe.

More information, in Dutch, can be found in the document below.

On the 13th of December Robin gave a technical talk on his transcriptomal work about the matrisome of the murine and human dorsal root ganglion at the GOA consortium meeting.

On the 8th of December our lab attended the RARE-MED symposium. Robin presented his transcriptomal work on the matrisome of the murine and human dorsal root ganglion. Marlies had a poster and poster pitch on defective collagen biosynthesis in kyphoscoliotic Ehlers-Danlos syndrome due to pathogenic variants in PLOD1 and FKBP14.
More info on the symposium can be found at raremed-ugent.be