Global Learning Conference on EDS

Between July 17th and July 21st 2024, the EDS Society organized the Global Learning Conference on EDS in Phildelphia USA, bringing together individuals and families with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), health care professionals and experts,  for learning, collaborating, and networking. The last day was devoted to the genetically defined types of EDS and covered topics such as loving and ageing with EDS, dealing with lung and skin complications, recommendations for exercise and physical therapy,  interpreting genetic results, ... Together with Prof. dr. Anne-Marie Malfait, we proudly presented our pain research to the EDS community.